Its been a while since I updated my blog. The last month has been busy. Christmas preparations started, the decorations are up. The 30th of November was Heathers 9th birthday and party arrangements were all set. Over the last few months her seizures have increased and everyone around heer has been worried. Her epilepsy medication was increased and we were referred back to the london hospital for review. I've been finding it increasingly difficult to keep her awake. They asked us to try a new medication that completely exasperated the situation. She slept for almost the entire week leading up to her bday. The medication was quickly withdrawn. On the morning of her birthday I was optimistic she would have a great day with a small party surrounded by all those who love her. We woke to find the entire country had been covered by a blanket of snow 14 inches of it on our doorstep. Party cancelled ,school closed...and again we made the most of the simplest things in life. We built a snowman and played for as long as she was able between seizures and sleeps. I think I had started to get a little too used to the amount of sleep she has been having. In hindsight I should have been more concerned I should have pushed doctors harder to listen to my concerns instead of allowing myself to be brushed off for so long.
Like hibernating squirrels we gathered food and nestled into our home for most of the snow week. The snow soon melted schools reopened but Heathers energy failed to pick up. Then the fever came. I figured the doctors had been right... Winter bugs, calpol and neurofen flowed to the rescue.
10 days later after many many hours of sleeping and many seizures I saw the gp again. He's a good man and a great doctor. He sent us to hospital. We were fobbed off and sent home again.
I was beginning to wonder if I had imagined these symptoms, am I over reacting , too concerned?? . My heart and my head told me otherwise. I brought her back to hospital a few days later.
So here we are. After much heated discussion I finally got my way. A chest.xray. It would seem that in the phrase "her chest sounds clear" the word "sounds" is key . Chest infection confirmed we started antibiotics. At first they had very little effect and she has required oxygen for the last 24 hours. Her blood test results came back showing she has tested.positive for mycoplasma pneumonia so specific antibiotics have now been started intravenously and hopefully we should see some improvements soon.
It would be nice to get home and make sure that our christmas celebrations beat the birthday disasters!.
We may have underestimated the strength of something very very small... The minute bacteria that is knocking my girl sideways.
Posted from mobile
Sandy :)
